John Hudson lives with epidermolysis bullosa (EB), a rare condition that makes his skin incredibly fragile and turns everyday life into a constant battle of care and pain. Through Special Books by Special Kids, his story has touched millions, not just for his resilience, but for the unwavering devotion of his father. From daily bandage changes to endless hospital visits, his dad has never left his side, carrying both the physical and emotional weight with quiet strength. Their bond has become a
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John Hudson lives with epidermolysis bullosa (EB), a rare condition that makes his skin incredibly fragile and turns everyday life into a constant battle of care and pain. Through Special Books by Special Kids, his story has touched millions, not just for his resilience, but for the unwavering devotion of his father. From daily bandage changes to endless hospital visits, his dad has never left his side, carrying both the physical and emotional weight with quiet strength. Their bond has become a
8.7K views4 months ago
FacebookThe Quote Circle
Teen with rare skin disease shares his touching story
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Teen with rare skin disease shares his touching story
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YouTubeStaten Island Advance
John lives with epidermolysis bullosa, a condition that leaves his body covered with open sores. He has over half his skin and is constantly battling severe pain. John still finds hope in serving as an example for others that it is possible to survive difficult times. ✅ FOLLOW @alpha_leaders for more Video - specialbooksbyspecialkids on YouTube | Leaders Community
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John lives with epidermolysis bullosa, a condition that leaves his body covered with open sores. He has over half his skin and is constantly battling severe pain. John still finds hope in serving as an example for others that it is possible to survive difficult times. ✅ FOLLOW @alpha_leaders for more Video - specialbooksbyspecialkids on YouTube | Leaders Community
1.4K views7 months ago
FacebookLeaders Community
Living in a Body of Open Wounds with Less than Half His Skin (John Hudson - Epidermolysis Bullosa)
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Living in a Body of Open Wounds with Less than Half His Skin (John Hudson - Epidermolysis Bullosa)
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John Hudson has been courageously battling Recessive Dystrophic EB (RDEB) for over 20 years, and in that time there has been remarkable progress made towards a cure for EB. Since 2010, EB Research Partnership has funded 140 innovative projects aimed at treating and curing EB. In fact, we were investors in the treatment John Hudson is using right now. In 2023 alone, we funded 7 curative projects. We won’t stop until a cure for EB is found. Donate today to help us fund life-saving RDEB research to
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FacebookEB Research Partnership
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John Hudson Dilgen, a Staten Island resident and tireless advocate for Epidermolysis Bullosa researc
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Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a devastating genetic condition that makes even minor friction cause wounds and scarring. The new documentary Matter of Time, premiering at Tribeca Festival, is spotlighting the urgent need for research and cures. If you or someone you know experiences unexplained skin fragility or blistering, early diagnosis can change outcomes. 📸 photo credit: Mayo Clinic & American Academy of Dermatology Book a consult: www.drannachacon.com | Ann
52 views8 months ago
FacebookAnna Chacon, MD FAAD
Alpha Leaders ™ | John lives with epidermolysis bullosa, a condition that leaves his body covered with open sores. He has over half his skin and is... | Instagram
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His lungs could barely hold on. But he couldn’t contain himself when he saw his mom. - Guilherme Granda Moura had been struggling for his life for 15 days. One day, his eyes opened and he only had one wish: To see his mom. Life has not been easy for little “Gui”. His strange illness has taken a toll on his body, harmed his skin and wreaked havoc on his body. This is what the mysterious Epidermolysis bullosa causes. | Vitamin
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20-year-old John Hutchins lives with epidermolysis bullosa, a rare and painful disease that results in sores and blisters on his skin. Now, he’s part of a new documentary raising awareness of the disease. Via ABC Adelaide. If you need someone to talk to, call: Lifeline on 13 11 14 Kids Helpline on 1800 551 800 MensLine Australia on 1300 789 978 Suicide Call Back Service on 1300 659 467 Beyond Blue on 1300 22 46 36 Headspace on 1800 650 890 QLife on 1800 184 527 #EB #ABC #Health #RareDisease #Epi
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